PKU.com Community Discussion Forum Parent support Breastfeeding and PKU Reply To: Breastfeeding and PKU

#8761
Avatar of carrie
clenk
Member

 how are you doing?
\\
my daughter was diagnosed about 3 weeks ago and we've been playing with the numbers- we still don't seem to have her stabilized – i'm very interested in knowing how your dietitian figured out how much formula to give. Right now i feel like we're just guessing and i'm doubting we'll be able to continue nursing- and right now she is able to nurse about 7 ounces per day( she has severe pku) which as you can imagine is difficult to figure our while nursing so we'll likely be ebm very soon. 

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional