Community Discussion Forum Parent support Breastfeeding and PKU Reply To: Breastfeeding and PKU

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 how are you doing?
my daughter was diagnosed about 3 weeks ago and we've been playing with the numbers- we still don't seem to have her stabilized – i'm very interested in knowing how your dietitian figured out how much formula to give. Right now i feel like we're just guessing and i'm doubting we'll be able to continue nursing- and right now she is able to nurse about 7 ounces per day( she has severe pku) which as you can imagine is difficult to figure our while nursing so we'll likely be ebm very soon. 

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