Community Discussion Forum Parent support PKU – numbers and such and lots and lots of questions Reply To: PKU – numbers and such and lots and lots of questions

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Congrats on your new baby!  My name is Katie and I am 25 with PKU.  Unfortunately, like Breanna said, it is a lot of experimenting to find out exactly how much phe a PKUer can tolerate.  I can assure you that your daughter will be fine as long as she eats the right foods.  Often times clinics over-emphasize how BAD pku can be… there are alot of people on this website that can prove to you that PKU is completely manageable!  If you should need ANYTHING at all, please do not hesitate to ask :)  I would love to help in any way I can… and try to enjoy your little one despite learning all about the PKU — they grow up quick!!

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