My older sister have pku too and if i can give anyone with a child with pku an advice, meeting someone with pku will help them. I do not know how my life would be whitout my sister. Knowing someone having the same difficulties then yours is a relief.
For all parents who have a pku child, thank you. I can't imagine what you are going through and i admire you.
Don't give up, your child will thank you one day for all you have done for him. But until that day you will have to be strong.