PKU.com Community Discussion Forum Parent support what is the real efficacy of formula ? Reply To: what is the real efficacy of formula ?

#8780
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clenk
Member

 It was explained to me that the formula is just like regular formula except it is broken down so far that they could actually remove PHE from the protein strains so that the child can get all of the extra nutrients and the other amino acids in the quanity that they need – except PHE

But since all PKU kids do process PHE- even if it is just very slowly- and since we all need at least a little PHE- we couldn't just give our kids the formula- they need a little bit of breastmilk or something that has PHE in it – just not too much. 

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