PKU.com Community Discussion Forum Parent support increasing phe with increasing age Reply To: increasing phe with increasing age

#8781
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Cook4Love
Member

Hi Medina
When Molly was around 8 months her blood phe level was high (no sickness).  We lowered her phe intake and they were high again.  We again lowered phe intake.  Like you we were getting very worried — why would her tolerance decrease.  It ended up that she was not getting enough calories or phe and was becoming mildly catabolic (where the body breaks down muscle and causes the levels to go up since the muscle is made up of protein).  We upped her special formula for more calories and ended up increasing her phe tolerance.  Her came down quickly.  Up to that point we did not understand the importance of calories.
Good Luck!
Brenda
http://www.cookforlove.org

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