PKU.com Community Discussion Forum Parent support anyone ever hit 0 phe level? Reply To: anyone ever hit 0 phe level?

#8793
Avatar of Breanna
BreaMarie91
Member

The only time my phe levels have dropped that low was shortly after I began taking Kuvan. If your daughters phe levels drop that low it just means that her body is breaking down more phenylalanine, most likely because of her growth spurt. As long as her phe levels aren't this low over a long period of time I am sure she will be just fine. On a positive note this may mean that you will be able to increase her phe tolerance and allow her to eat a little bit more.

Take care,

Breanna 18 CPKU

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional