Community Discussion Forum Parent support anyone ever hit 0 phe level? Reply To: anyone ever hit 0 phe level?

Avatar of medina

I think you should create a good balance between regular milk and comida . when my baby was one month old , his dietition gave a very bad regim to him . when his phe was up , she said  you should give him 18 bushel formula and 3 bushel regular milk . when the phe was down , she said give him 18 bushel regular milk and 3 bushel formula. and we decided to give regim to him ourselves . then it was good . when your baby phe is so low , it means that you gavehim a lot of formula . so you should reduce the amount of it. and in these situations the best dietition are parents .

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional