PKU.com Community Discussion Forum That’s PKU life! Kuvan input Reply To: Kuvan input

#8829
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BreaMarie91
Member

I've been on Kuvan for 2 1/2 years now. I take ten pills a day, which is not that bad, because the pills are relatively small. Keep your diet consistent while taking Kuvan, because that is how your doctor will know if you are a responder or not. They look to see if your phe levels drop even though you're eating the same amount of phe.

Good luck!

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