PKU.com Community Discussion Forum That’s PKU life! Kuvan input Reply To: Kuvan input

#8832
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arkham
Member

I'm on Kuvan, and have been for about 2 years.

My levels before Kuvan were around 11-12 while eating 30 grams of natural protein (protein from food) and supplementing with 3 servings, 30 grams of protein equivalent of formula.

On Kuvan, my levels are around 4 while eating 45 grams of natural protein (protein from food) and supplementing with 1.5 servings, 15 grams of protein equivalent of formula.

I do have to take a number of pills, and as dosage is based on weight, more than the others posting here – I take 19 pills a day. I find it not a major problem for me at all.

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