PKU.com Community Discussion Forum That’s PKU life! Kuvan input Reply To: Kuvan input

#8843
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BreaMarie91
Member

Yes I do have classical PKU, and if you would like to email me it's completeangel@ameritech.net. Keep discussing this with your dietitian, because if there really is a solid reason she doesn't want you on Kuvan then she should be able to give you specific information.

Good luck!

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