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#8855
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Cook4Love
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A blood test will reveal if your phenylalanine levels are too high and from there you can figure out if PKU could be the cause of your seizures.  I am not sure of your age, but the fact that you were taken off diet so young must mean you have a very mild form of PKU.  That being said, as you get older you consume more and more protein and it is very possible that your PAH enzyme (in your liver) activity could not break the growing amounts of phe and it is accumulating in your blood.  You are likely better off at a clinic that deals with PKU so they know what tests to run.  Just so you know, there is a relatively new drug out called Kuvan (BioMarin – the manufacturer owns this website) that might be a huge help to bring down your levels.  Good Luck & keep us posted!  Brenda

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