Community Discussion Forum Parent support My son has PKU, how do I deal with this? Reply To: My son has PKU, how do I deal with this?

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 Hi there!

Congrats on your baby!

I think that all the others have shared their experience and been really helpfull, as they have been to me also in the past.  Some more thoughts from a parent…

I have a six month old daughter with PKU. She looks exactly like her father, and I love her for that. She has my smile, her father's calmness and sometimes  temper, she's smily and social like me. And I'm sure she's going to grow with her own exciting character. Yes, she inherited PKU from both of us, but we have contributed to her  whole wonderful self. I still think that it;s going to be difficult and challenging for her, but I have never thought that I was responsible for that. Don;t feel guilty and I agree with Cookforlove, enjoy, enjoy, enjoy your son as he;s growing up. 

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