PKU.com Community Discussion Forum Parent support My son has PKU, how do I deal with this? Reply To: My son has PKU, how do I deal with this?

#8884

Thank you everyone for replying. I have really accepted this and am determined to get on with it but it has reaally hit my husband hard. He feels so guilty and feels that he is “distancing himself” from me and Riley. I'm finding that harder than Riley having PKU at the moment.
We are in UK
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