Community Discussion Forum Parent support Is it a red line around meat for pku people ? Reply To: Is it a red line around meat for pku people ?


 I certainly agree with Brea. About 30 years ago doctors thought that it was ok to take people off the pku diet which wasn't good at all. I was one of them I ate everything meat, eggs etc but found them hard to digest and use to suffer greatly after eating these products. Chicken, fish and milk didn't excite me much as they taste like nothing and I use to gag.

Time went by and my health deteriorated so much that now I am back on the diet which was the hardest thing I had to do for myself but gradually I did and now I am living a great quality life again.

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional