PKU.com Community Discussion Forum New to PKU.com PKU mother in Alaska Reply To: PKU mother in Alaska

#8963
Avatar of Julie
calhoun
Member

Thank you, Kathleen!  I will definitely go to your facebook page.  Do you still live in Anchorage?  We are in the process of trying to find daycare for our baby.  Did you ever have to put your child in daycare?  Any suggestions on who would be good with a child with a restricted diet or suggestions on how to tell people about PKU so they take it seriously?  

I am all about creating an Alaska PKU community.  Maybe we can even try to get the law changed so that insurance has to cover the medical food.  

I look forward to chatting with you more!

Julie

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional