PKU.com Community Discussion Forum Parent support Infant “Puffiness” Reply To: Infant “Puffiness”

#8983
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jakesmom
Member

He was born May 23rd. His pku levels at the start of June were 317, they went up to 347 when tested June 16th. They retested them on Tuesday but we are waiting on those results. It seems like they are leaning towards HyperPHE as his diagnosis…but they are also waiting on a urine test for more information. (From what we are being told)

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