PKU.com Community Discussion Forum Parent support how to overcome seizures ? Reply To: how to overcome seizures ?

#9070
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BreaMarie91
Member

If his phe levels are too low he could be catabolic. This means that he is not getting enough phe to grow properly, so his body is getting phe from other sources of protein like his muscle. Since muscle is pure protein if his body is breaking muscle down to get phe it could actually increase his phe levels…does that make sense? It could be related to his PKU, so I would let his parents know they might want to bring this up to his specialist.

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