PKU.com Community Discussion Forum That’s PKU life! Too Low?!?! Reply To: Too Low?!?!

#9133
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Anonymous

ITS COOL THAT YOUR PHE TOLERANCE WENT UP JUST DO NOT FALL BELOW THAT 1.4 IT IS DANGEROUS THE DOCTORS/NUTRITIONISTS SHOULD TELL YOU THIS BUT IT DOESN'T ALWAYS HAPPEN THAT WAY SO YES BELOW 1 IS JUST AS BAD. HAVE YOUR DIETICIAN ADJUST INTAKE UNTIL IT IS STABLE THEN WATCH TYROSINE/OTHER VALUES CLOSE TOO TRY NOT TO SHOCK  YOUR SYSTEM , 

                             CONGRADS YOU CAN EAT MORE NO THAT IS ALWAYS HELPFUL =<}

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