Beth I'm a little surprised your dietitian told you that you wouldn't be able to have healthy children. Women with PKU can have 100% perfect babies as long as they monitor their diet closely throughout their pregnancy. I definitely suggest you go to this link: patientpower.info/series/living-well-with-pku-2010-series and listen to the program titled PKU & Pregnancy: Lower the Risks & Having a Healthy Baby. This program features a woman who has PKU and also has six healthy children. It's definitely an inspiring story and proof that having children is very possible for PKU women with a little bit of effort.