PKU.com Community Discussion Forum Parent support Does this describe you or your pku child? Reply To: Does this describe you or your pku child?

#9170
Avatar of carrie
clenk
Member

 Great to hear!

I also noticed the discrepency in the numbers while looking at the slides- i was very surprised that such a large % of kiddos (even those ages 0-4) were out of range- and it made me feel a bit better about the fact that while teething or something my child also is out of range for a week  or two. 

It is very hard as mamma to a pku baby to know what the future will hold and how much of an impact pku will have on their life and what i can do now. Today we had her evaluated from an early intervention standpoint and things like gross motor skills and fine motor skills are fine. But then I wonder will there be other emotional issues later- is there any way to prevent these things from happening? Is there therapy we can start? Something we can DO as parents to help give our child the best start possible. 

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