Community Discussion Forum Parent support Does this describe you or your pku child? Reply To: Does this describe you or your pku child?

Avatar of Jennifer

 I agree with Brea.. a lot of the numbers are showing for off diet PKU people. As a mother to a PKU baby I completely understand where you are coming from. My son is going to be a year old and has ALWAYS been ahead of his milestones… he even started walking at 9 months old. He is very bright and very observant. I think its just important to remember to keep them on diet and watch their levels. I notice when Ian's get higher he does get grumpy… so I keep him on lower phe foods til his levels come back down.

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional