PKU.com Community Discussion Forum Parent support out of control levels Reply To: out of control levels

#9197
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beckyboo
Participant

HI there,

I am on a very strict diet myself and I am being monitered 3x a week! 

I agree with kennyboy, it could be because they are not getting enough phe…..however, my levels have gone up simply when I am not getting enough calories! 

Does your lil man eat enough calories? When we are restricted on how much protein we can have, it can be tricky to get enough calories in (thats my problem).

My levels tend to go up when Im not eating enough generally so if you can find something he likes with calories in I agree with clenk that even if it is pasta twice a day, then it would be better than having high levels?!

I hope I have helped x x

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