Community Discussion Forum New to PKU carrier gene test? Reply To: PKU carrier gene test?

Avatar of Alan

Thank you so much for clearing everything up.

Just a few other questions;

1. Our son is currently being breastfed before we have our results back. He was born on the 17th of Oct and so he is around 3 weeks old now. If he does have PKU, would it harm him to not be on a strict diet ASAP?

2. I'm quite concerned about how he will develop physically on a strict low-protein diet, he came out into this world at 4.24kg(9 pounds 3oz i think) and I had the hopes that he would grow to be a big strong boy but now I'm not too so sure?

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional