I am happy you have found this group! It is a fantastic place to meet others with PKU. I am not sure this would have made a big difference to me when I was struggling with PKU b/c I am notoriously hard headed and can't learn from others! LOL! But I know it helps me now! When I was growing up I lived in South Dakota and we had to travel all the way across the state and then through Minnesota to Minneapolis for clinic, I know how it feels to feel like you are the only one with PKU. I didn't meet another person with PKU outside of PKU organized events until I was in the Navy, in Japan, on a ship, and low and behold there was another guy with PKU on my ship…who would have ever thought in such a small environment I would meet someone with PKU there?!
How did you start a Forum? I tried to figure it out and couldn't, so I just started a blog!