Community Discussion Forum Adults and PKU where has this been all my life? Reply To: where has this been all my life?

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I am happy you have found this group!  It is a fantastic place to meet others with PKU.  I am not sure this would have made a big difference to me when I was struggling with PKU b/c I am notoriously hard headed and can't learn from others!  LOL!  But I know it helps me now!  When I was growing up I lived in South Dakota and we had to travel all the way across the state and then through Minnesota to Minneapolis for clinic, I know how it feels to feel like you are the only one with PKU.  I didn't meet another person with PKU outside of PKU organized events until I was in the Navy, in Japan, on a ship, and low and behold there was another guy with PKU on my ship…who would have ever thought in such a small environment I would meet someone with PKU there?!  

How did you start a Forum?  I tried to figure it out and couldn't, so I just started a blog!  

I hope to talk to you soon!

Jenni xxx

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