PKU.com Community Discussion Forum New to PKU.com mild hyper pku and behavoir Reply To: mild hyper pku and behavoir

#9285
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mildhyper
Member

Thank you to all who have replied.  I didn't realize anyone had responded, because I thought I would have been notified by email.  Went to Mt. Sinai this week, but levels not high enough (3.4) for aetna to pay for kuvan.  however, I think we may be able to get a trial dosage from bio marin (thanks!)  I will let you know how it works out regarding depression/rage behavior. 

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