It is most definitely overwhelming for a parent in the beginning. I can speak for my mom when she was given the news that I was born with PKU 26 years ago. THere have been so many medical advances in research, treatment, and tastes of formula and foods. The PKU world is continuing to improve each day.
Let me introduce myself. I am Katie, 26, with PKU and on diet since 9 days old. Following diet (with following both food and formula treatment under supervision of a dietitian) your baby can live a healthy and sucessful life. I recently finished a Masters degree and have been teaching for several years.