Community Discussion Forum Adults and PKU Returning to diet Reply To: Returning to diet

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hi im 20 years old and have been off the diet pretty strongly for about 4 years and have not drank formula for about 7 years. this probably sounds crazy, i know. i decided to go off when i was about 13 because i would eat something like a hamburger the day before a blood test and it would come out perfectly normal everytime. i never had an abnormally high PHE level.
when i left the diet i was put on 18 exchanges a day and it just wasnt enough for me to be full on and i felt like i was way too skinny and small. i am older now and wonder what i would feel like if i was still on the diet but i dont feel close to any seizure's and dont feel like ive had a major drop in IQ.

i just wanted to know what some other people had to say about my diet.

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