Community Discussion Forum Adults and PKU Returning to diet Reply To: Returning to diet

Avatar of lynsey

hiya uncleteef

i cant imagin wot u must b goin 

i have classic pku but i live in uk i think is terrible in us 4 perscriptions cus in uk we get all our low protein food n formula free but we dont if we work full time thats only the hardest part in uk

i think free perscriptions shud b all over the world cus pku is 4 life

in uk we have exchanges im on 3 a day n i take 3 pku cooler 20z a day too this is bcus im on the pre conception diet n my blood levels r at 120 so it wivin range to strt tryin 4 a baby now


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