PKU.com Community Discussion Forum New to PKU.com new to site and have some questions Reply To: new to site and have some questions

#9446
Avatar of carrie
clenk
Member

 I would suggest going to see your doctor first then getting a referral to a clinic and start with a blood test. Everyone's diet is different and some need lots of formula and others just can do it with the diet changes. Once diagnosed and evaluated you'll have a better clue as to where to start. 

Does this mean you've been eating meat?dairy? grains? all this time? were you diagnosed cpku?

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional