Community Discussion Forum New to My sister has PKU and i need some info. Reply To: My sister has PKU and i need some info.

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Thank you both for your posts it helps that there are people with advise, We are from Johannesburg in South Africa. She was not tested at birth so my parents only picked it up very late and in turn has caused terrible brain damage. We keep her on a strict diet, and give her all the support possible when it comes to her mood swings. I have just been doing some research into any information i can find that could possibly make her life the best that it can be, she is a 20 year old girl that can only write the letter P of her name, yet she has taught me the biggest lessons i will ever learn in my life, im a good person because of her. She has done this for me i want to do anything in my power for her and other children that are like her.

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