Community Discussion Forum New to Just found out … Reply To: Just found out …


 i had the exact same reaction. it gets easier once you start going to clinic and each time they tell you more and more. and they give you so much information and tools to work with. as they will tell you, as your child grows, he learns and knows about his condition, he will never know the difference and it will be so natural to him as what we eat is natural to us. my son is 17 months and ive actually tried giving him a tiny bite of a french fry, and he doesnt like it. i assume cause its not his kind of food. 

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional