PKU.com Community Discussion Forum That’s PKU life! just abit confused … Reply To: just abit confused …

#9557
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foufouka
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One of the first things I remember is me saying: they got the wrong diagnosis, my daughter is fine with all the regular formula she's drinking  (every meal 4 reg/1 pku)…. idon't know why it happens. maybe it has to do with their metabolism as they grow up so fast at this age… But I ;m sure everything is fine. DO not be scared with levels like that, since here in Greece, and from what I know in Germany to, accepted levels are >1.2, that would be your 80…. Our doctor was strict, so my  daughter during the first year was always between 1.2-2..( multiply with 60 for your levels). And she's now at the 95th percentile of hight, 80th of weight. She grew up fine and so will be your son.

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