Community Discussion Forum Parent support Phe tolerance decreasing?! Help please Reply To: Phe tolerance decreasing?! Help please


My son has classic PKU, so his tolerance is much different than what your son can have. However, my dietician has told me that we can expect his tolerance to change a bit at different times in his life. Specifically during ages when he is going through growth spurts or if he gets very involved with a sport of excercies is phe tolerance may increase. When his growth spurt stops or if he was very involved in a sport and then stopped, his phe tolerance would decrease as a result.


I hope this helps. Good luck!

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