Scubalele – I just wanted to say Hi and that my daughter was born Dec 1/11 – she also has HyperPHE and so far her levels are with in the 'safe' range – her highest has been 172 – however, we have to get monthly blood work done to ensure she stays below 360. Each month I am a basket case waiting for the # to come in. And each month I dread taking her to get blood as it seems to be a chore to hit her vein with it being so small.
Is your daughter teething? They told me that teething could cause a spike in the levels. Since our daughters are the same age, I thought it would be good to introduce myself. Perhaps we could go through this journey together. I'm dreading starting solid foods!