Community Discussion Forum New to PKU cure? Reply To: PKU cure?

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There is no cure' as of yet, the supperment helps fill the body up when you are on that low protien diet. I do  know that your body is missing a gene that breaks down that Phen level, thefore it accumlates causing  brain damage and mental retartding of the untreated person.

But if treated on this diet, the brain will grow as normal whist the people looking after the pku diet  will regulate Phen levels, too much lower Phen intake,  too low increase a bit more with Phen intake etc. But to do this they have do a speicla blood test to measure Phen levels.

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