I have PKU and my big burly son was born 15 years ago. I started on diet 1 year before I conceived. Once I was pregenant My body needed more calories and so I needed to eat more. I managed to keep my level between 1 and 6 throughout the entire 9 months. By the third tirmested I was eating high phe foods like regular hotdogs and pizza because my level was getting too low. The day I had my big bouncing baby boy my level was at 2.0. He was born healthy and beautiful. It was so worth all the counting and cooking and blood tests. When I saw his little face all the difficulty of the past 9 months just melted away. It was so worth it.
I am 41 now and my son is the spitting image of his father with the exception of his big pouty lips and his freckels. Those came from me.