Community Discussion Forum What’s the Phe? Home blood testing kit Reply To: Home blood testing kit

Avatar of Snuffles

I use those diebetic needle pens for getting blood samples, then I have these speical blotting paper with 3 circles on it. I have fill them all with my blood from my finger that I have pricked for fresh samples and after drying I send them in normal post mail to Royal Children's Hospital for it to anylazed.

Few days results comes from their protien labs and I ring my dietitan or nurse at Monash PKU clinic for my results, lately my phe has been excessivly high. But it has been like that for most my life until they put me on diet, now off it it is never below 1200!!!!

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional