Community Discussion Forum Parent support Any body from the uk? Reply To: Any body from the uk?

Avatar of christine

i'm a mum of a 40 year old.My son Michael was born in 1972 and was diagnosed when he had the heel blood test.Apart from being a bit slow he's managed to marry and have a son of his own.In those days children were able to come off the diet when they reached 16 or 18 which Michael more or less did.During his20's or 30's he was advised to go back on to diet but has not been able to get back on it properly.Recently he has been admitted to hospital because of high levels so now understands that he has to follow it properly .cannot help you with info on exchanges because things have changed over the years but hope this makes you feel ok for the future Michael is a lovely caring person .i don't know how many pku people are in the uk now.

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