PKU.com Community Discussion Forum Parent support vaccines Reply To: vaccines

#9774

Her specialist will not let us put off blood work at all, especially after her one year vaccinations and the 9 week phe level issues we have experienced. Her levels are still not down to their usual range and we have had to start removing things from her diet to get them back down, but so far, to no avail. This week, we are removing milk and praying for lower levels. As a parent, how does one deal with the stress of all of this? Is it always going to be this way every time we go for her vaccinations? I guess the reason I am on here is to try to connect with other people that have been where we are right now and are willing to share their experiences. I appreciate you sharing..I have got to learn how to cook so that she can have the foods she needs. Thank you for the cooking ideas!

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