Community Discussion Forum Adults and PKU Adults With PKU Born before 1966? Reply To: Adults With PKU Born before 1966?

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Our son, Tommy, who's now 36 was late diagnosed at age 4. This resulted in significant brain damage leaving him moderately retarded, non-verbal, with autistic tendencies and severe behavioral problems. His major problem today is his behavior which can be violent at times where he may injure himself or others. He's on a lot of meds and takes his Phenylfree2 formula and follows a low protein diet with his phe around 11. He has high anxiety with a lot of loud and angry outbursts. When we take him to a PKU Clinic all they look at is his diet but there doesn't seem to be anywhere to go for the real major issues in the Northern New Jersey/New York City area! Can anyone help us find someone or some place where Tommy can find the help he needs?!!!  

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