The next PKU Adult Program conference call will be held on March 20th at 7:30 PM Eastern (US). Any adult with PKU who would like to participate is welcome to join in the call.
Topics for discussion include: a website for adults with PKU and what elements an ideal site would contain, the proposal of a clinical reference for practitioners treating adults with PKU, progress update on the formation a maternal PKU mentoring program, progress update on the creation of a simple reference for adults returning to diet, and brainstorming what would be helpful to assist adults with PKU returning to treatment or who are seeking to be more compliant.
If you would like to receive the call-in information and the agenda, please email us with your name, age and geographic location and we will be happy to email you the document as an attachment. If you are interested in being involved but are unable to attend this conference call, please let us know as there will be regular conference calls and opportunities to participate.