Viewing 13 posts - 1 through 13 (of 13 total)
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  • #4610
    Avatar of Garcia

    any Canadians on here?

    Avatar of Laura

    we are canadian…we live in ontario!!

    Avatar of Breanna

    No, I’m from Wisconsin.

    Avatar of Sara

    Hi! I am from Ontario. My daughter is in the hosptial in London. We are waiting back on the blood work to see if in fact she has PKU. Her screening came back positive so that is why they did the test. How did you parents deel with all of this at first. We just want to know if she has it or not.

    Avatar of Garcia

    good luck with your daughter and the results
    I am 19 with CPU from Hamilton.

    Avatar of Laura

    We also deal with the doc’s in London ….i bet it is the same one. At first it wasn’t easy….you think and read about the terrible things! They are wonderful in London….they make sure everything is understood!! PKU as you know isn’t something that goes away….but you can deal with it and learn to live with it. Just remember when your feeling down….there are many other things out there much worse then PKU!!!

    Avatar of Thom

    born and bred in beautiful british columbia! but moving to korea soon… can anyone tell me more about that pill treatment? i think it would be easier than lugging crates of powder around.

    Avatar of Marni

    I’m from South Western Ontario. This PKU is all new to me. My husband and I may be fostering a baby with PKU soon. So, I thought I should learn all I can about this before the baby is living with us.

    Avatar of tina

    Hi, we live in Nova Scotia and our son has PKU he is 6 weeks old.

    Avatar of STEPHEN

    are there any people with pku in toronto ontario


    i never met anyone withg pku

    Avatar of carrie

    we are an albertan family!

    Avatar of Michael

    Hello I'm 25, from Quebec city and have pku.

    My older sister have pku too and if i can give anyone  with a child with pku an advice, meeting someone with pku will help them.  I do not know how my life would be whitout my sister. Knowing someone having the same difficulties then yours is a relief.

    For all parents who have a pku child, thank you. I can't imagine what you are going through and i admire you.

    Don't give up, your child will thank you one day for all you have done for him. But until that day you will have to be strong.


    Michael Miousse

    Avatar of Elyse

    I am from Ontario, Canada. Recently my premature son was found to have PKU, he is now 17 days old. It was a struggle to deal with at first to know that worst case senario, my son could not eat very much of our everyday food. Due to lots of research on the topic and helpful posts from people, we have found that it is an obstacle but not impossible. This website is just fantastic, and wonderful. It has eased my mind tremendously to know that there is support and others going through the same stress.

Viewing 13 posts - 1 through 13 (of 13 total)
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