Community Discussion Forum New to Children of Women With PKU

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  • #4693
    Avatar of Rebecca

    I am a 44 yr. old woman with PKU. My children have been adversely affected by my PKU. I was late-diagnosed, and after being on the diet for only a year as a child, went on to have children in my 30’s-being told by my doctors during each pregnancy that my PKU wouldn’t hurt my babies.I had 4 sons and lost a baby through miscarriage. My sons were affected and the miscarriage was a result of my high phe levels at that time. I’ve never met anyone else who has had this experience, but would like to.


    well… i am not a women with pku but a mother and that is very sad to hear. i am sorry and i wish you the best of luck ! heather <3

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