Viewing 5 posts - 1 through 5 (of 5 total)
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  • #6308

    Ok,
    Im noticing some things in the recipes, is the amount of protin and then the phee levels in it. I don’t get that, My daughter is aloud 4g of protin a day, so what dose the phee mean? I know phee in things is bad i don’t let her anything if it has phee in it. But now im confused! Help please! nStephanie
    Thanks!

    #6309
    Avatar of Breanna
    BreaMarie91
    Member

    Hey Stephanie, nPhe is the amino acid that we can’t have because we have PKU. A rough estimate is that 1g of protein is equal to about 45mg of phe. It’s just another way of counting the foods. So your daughter would probably be allowed 180mg of phe if you counted in phe. I guess it’s just a more exact way to calculate food intake. I hope this is understandable, is this the information you needed?
    If worse comes to worse, you could always ask your daughters PKU doctor or dietitian. They should be able to explain it to you. nBreanna n16 CPKU

    #6318

    Thanks a lot. We don’t count in Phee. Maybe we never will, seems a lot more simple with just the counting of portin. Ya I have tried to get ahold of her dietian, but shes only in 2 day and works out of her house the others so its just a waiting game. nThanks!

    #6319
    Avatar of Breanna
    BreaMarie91
    Member

    Oh well then that has to be hard. Would your dietitain be okay with you emailing her? It’s just a suggestion, that is how me and my dietitian keep in contact most of the time. nBreanna

    #6344
    Avatar of Meaghan
    mayrogers13
    Member

    Mom i know exactly what you mean! when I was diagnosed in 88 we never had exchanges or phes , only grams of protein. Just about a year ago I started counting phe (the age of 17) and i’m fine. Which ever works better and is easy for you is the best way to go.

Viewing 5 posts - 1 through 5 (of 5 total)
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