I don't know how to even begin searching for a doctor. I have tried the internet and I am coming up short. I gather information for a living but finding a doctor who specializes in PKU is proving very difficult!
Anyway I am 27 years old and want to have kids by the time I am 30. So I thought I would start the arduous task of getting healthy and back on diet now. But I'd like to start with a doctor.
Can someone help give me a reference to connect me with a doctor in Northern California?
I live on the other side of the country so I cannot really give you any spefic help, but did you try the clinic finder on this website? I tried it and plugged in my zip code, and my clinic along with others I know close by popped up so it seems to be updated and working. Even if they can't give you a specific doctor, finding a clinic that specializes in metabolic disorders like PKU is a good first step. Unfortunately with the condition being rare, in some areas of the country (and of the world, for that matter) people have to travel a bit to get to a clinic. I'm one of the few lucky ones, as I live just 10 minutes from my clinic!