PKU.com Community Discussion Forum New to PKU.com hi i’m new

Viewing 11 posts - 1 through 11 (of 11 total)
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  • #5358
    Avatar of
    Anonymous

    Hey I’m Caroline I’m 15 and I have PKU. Sometimes I like having PKU and sometimes it’s really annoying. I don’t know anyone else who has PKU so this should be really intresting

    #5359
    Avatar of Breanna
    BreaMarie91
    Member

    Hey Caroline,
    I’m Breanna, I was just wondering where you live because I’m 15 too. I’m from Wisconsin and both me and my 8 year old sister have PKU. Hey if you want to check out a few more websites you can try these:
    http://www.myspecialdiet.com
    http://www.pkuboard.info (everyone is really active here). nBreanna

    #5360
    Avatar of Breanna
    BreaMarie91
    Member

    Oh and if you have email you can email me if you want at completeangel@ameritech.net and I have a myspace and facebook if you do too. You can just search Breanna Hardy if you want.

    #5441
    Avatar of
    Anonymous

    thanks! i’m from new jersey! thanks for the websites!

    #6400
    Avatar of Jack
    JackJack
    Member

    Hi I’m 14 other than me bother I don’t have any one thats PKU to talk to.

    #6407
    Avatar of Breanna
    BreaMarie91
    Member

    Hey Jack! My name’s Breanna and I’m 16. I have a little sister who has PKU too…and 4 sisters and a brother who don’t. Feel free to talk to me anytime you want! nBre

    #6459
    Avatar of
    Anonymous

    hey every one im Amanda.. im 21 with PKU. I live in victoria BC canada. (victoria is on vancover island) i have a PKU website and a PKU group on facebook.. feel free to check it out or add me as a friend.. i love chatting and with other PKUrs and just meeting others in general. u can find my site link on my profiel. I am going to college in the fall to get my professional counselling diploma then i hope to open a non profit genetic and metabolic disorder support center here on Vancover island. It is my dream to help others while creating awarness for PKU and other conditions. I would also liek to hold a PKU walk a thon sometime next year and doante the money to a low pro food store so people who cant afford foods can get some for free. all these dreams are a work in progress but i cant wait to see how they unfold.

    #6893
    Avatar of Amy
    amymatthew
    Member

    Hi caroline im amy im 21 and have a son that has pku he is 1 can you tell me a litte more about it so i now what im going to go though with him when he gets older

    #6907
    Avatar of
    Anonymous

    hi amy, im Amanda i am 21 and i have pku , id love to tell u all about pku and waht it has been likeing growing up with it, but its to much to type out here , so im gonna give u my link. i have a pku website were i posted my story and and any info u can find on pku, it has a guest book , message forum, live chat, my own journal and lots lots more. i think u would find it very usefull.
    here is the link just copy and paste it in ur search engine. http://pku.bravehost.com
    let me know if u have any questions and i will be happy to help u in any way!!

    #9498
    Avatar of Julina
    Jules
    Member

    Hey Jack! I would be glad to talk to you also!! You can tell me anything. I also have PKU. Some times it is a stuggle aint it?

    #9502
    Avatar of Taishawn
    TaishawnC
    Participant

    Hey im taishawn and im 17 on my way to college in 2 months and i have PKU and still have some things to learn about PKU

Viewing 11 posts - 1 through 11 (of 11 total)
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