Hey Caroline, I’m Breanna, I was just wondering where you live because I’m 15 too. I’m from Wisconsin and both me and my 8 year old sister have PKU. Hey if you want to check out a few more websites you can try these: http://www.myspecialdiet.com http://www.pkuboard.info (everyone is really active here). nBreanna
hey every one im Amanda.. im 21 with PKU. I live in victoria BC canada. (victoria is on vancover island) i have a PKU website and a PKU group on facebook.. feel free to check it out or add me as a friend.. i love chatting and with other PKUrs and just meeting others in general. u can find my site link on my profiel. I am going to college in the fall to get my professional counselling diploma then i hope to open a non profit genetic and metabolic disorder support center here on Vancover island. It is my dream to help others while creating awarness for PKU and other conditions. I would also liek to hold a PKU walk a thon sometime next year and doante the money to a low pro food store so people who cant afford foods can get some for free. all these dreams are a work in progress but i cant wait to see how they unfold.
hi amy, im Amanda i am 21 and i have pku , id love to tell u all about pku and waht it has been likeing growing up with it, but its to much to type out here , so im gonna give u my link. i have a pku website were i posted my story and and any info u can find on pku, it has a guest book , message forum, live chat, my own journal and lots lots more. i think u would find it very usefull. here is the link just copy and paste it in ur search engine. http://pku.bravehost.com let me know if u have any questions and i will be happy to help u in any way!!