PKU.com Community Discussion Forum Parent support I am a mother from china

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  • #5693
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    lindalady
    Member

    Hi everyone here! i am a mother from lanzhou city ,gansu province in China.it is a poor city.Well,my dear daughter is also a pku(classical).And it is the first time i speak here.Please excuse me the poor English.In china ,there are also many pku children here.But the food for them are not very sufficient. so, i want to inquire that how to get the low protein foods and powders?maybe we can work as an association or something else?
    The chinese website is http://www.china-pku .org.
    I hope your answering sincerely!Thank you very much!

    #5732
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    lorrie
    Member

    Hi,I am a mother of a child with PKU in the UK. We are fortunate here to be able to get a variety of low protein foods, flours and formulas.In the uk for every 15000 births a child with pku is born.There are websites that detail foods available such as the NSPKU site or lowproteinliving.co.uk,through these sites you may be able to get contact numbers/ email addresses if you wanted to talk directly to suppliers. If money is difficult it may be useful to try and access support through a charity. I hope this is useful xx

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