hi i have a son who has pku and to sisters who have it to,akasulfame k (not sure how to spell it),as long as it is on its own that is fine but if its with aspartame you cannot,hope this helps xx vicky xx
Well, I have been on this diet for 24years Yes there are many drinks out there with Aspertame(forgive the spelling) but I was told that the new sweetner of Surclose is one of the sweetners that don’t have many if any Phe’s, as with the drinks it depends on the type of drinks he wants but, My favorites are the traditional Fruit Punches as long as you go for a more common brand they tend to use regular sugar as their main source of sweetness.I do agree but, one thing I can’t seem to find is a mint or even gum that is not sweetened with Aspertame. I hope these helps.
Hi Linsey, nWelcome My name is Tracie and i have PKU as well.(like all of us)LOL I’ve just started back on diet myself about 1 month ago. I’ve been off diet for about 10 yrs. now, but i’m getting use to it. I’m on all the time.If you wanna talk i’m here. Take care, nTracie-PKU
Hey Jen, I do realize that some orbit gum does have the wrong sugar content,but there is some orbit gum that is sugared with alcolhol. I just look at the labeling. nAt least where i live they have that kind of gum. but thank you for remnding me,cause i do tend to forget. Tracie-PKU
I do know that the Splenda sweetner (I believe that uses Sucralose – not sure) is “safe”. However, if anyone is trying to gain calorie intake, this is not the sweetener for you (as it is low in calories).