PKU.com Community Discussion Forum New to PKU.com IAM A NENEWBIE

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  • #7974
    Avatar of LYNCH
    LAL464
    Member

    [COLOR=blue]
    HELLO EVERY ONE MY NAME IS LISA AND I WAS nBORN IN 64 WITH PKU. AS FOR ME WHEN I WAS A nCHILD I WAS ON THE PKU DIET THEN AT WHAT POINT I DONT KNOW WHEN OR WHY BUT MY PARENTS TOOK ME nOFF THE DIET. AND NOW AS A ADULT I HAVE BEEN OFF THE DIET SINCE CHILD HOOD. I KNOW I SHOULD BE ON THE DIET BUT IAM HAVING TROUBLE FINDING A CLINIC THAT IS NOT ONLY CLOSE ENOUGH TO ME BUT ONE THAT TAKES MEDICADE AND MEDICARE nYES IVE BEEN ON THIS SINCE I WAS 19YRS OLD.
    I NEED SOME GOOD ADVISE.

    #7998
    Avatar of Jennifer
    jenn_harney
    Member

    :-S Finding a clinic with a metabolic specialist might require some travel. They’re not exactly common!! :-) What state do you live in?? Can you contact someone like Health and Human Services and ask them for assistance regarding your financial situation? Tell them it is EXTREMELY important. At least annual checkups are essential in keeping your PKU body healthy!!! I’m betting there’s some requirement for the state to pay or something out there!! If you can’t find anything, let me know. My mom works as a social worker in Nebraska. Maybe she would know something about your state as well.

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