Marissa, I read your profile thingy and you said your 9, I’m 15 so I’m alittle older then you but if you ever want to talk to me you can. I have alittle sister who is 8 and has PKU too, her name’s Erica. nBreanna
Hi Danielle (I have alittle sister named Danielle!) nAnyway, wow I never realized there were so many others with siblings with PKU. Danielle do you have alot of other siblings? My dietian told me its more common for there to be more the one kid with PKU in big familys. I have an 8 year-old sister (Erica) with PKU aswell and then 4 sisters and a brother without PKU.
Hi everyone, my husband is 25 and has PKU. We are in the process of getting back on diet. He is very moody, tired and gets those severe headaches. It nice to see people on here that are around the same age. He has two siblings who do not have PKU, he is the youngest fo three.
hiya! Im Becky am 18, have been off diet for a few years now! would like to hear other peoples experience of PKU on and off diet! I noticed the sibling thing going on, I have 3 sisters I’m the special one in my family, none of the others have PKU!