PKU.com Community Discussion Forum What’s the Phe? if you are currently on chat here with others

Viewing 11 posts - 1 through 11 (of 11 total)
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  • #4731

    if you are currently on chat here with others that are currently on!!! heather

    #5080
    Avatar of Stacey
    RissaRoo_PKU
    Member

    hello! I am Marissa!

    #5142
    Avatar of Breanna
    BreaMarie91
    Member

    Marissa,
    I read your profile thingy and you said your 9, I’m 15 so I’m alittle older then you but if you ever want to talk to me you can. I have alittle sister who is 8 and has PKU too, her name’s Erica. nBreanna

    #5209
    Avatar of Danielle
    danirp24
    Member

    hey guys my names danielle and i am 23 i have pku and my older sister leann has pku also. i would love to chat and help you guys out with any way possible.

    #5210
    Avatar of Breanna
    BreaMarie91
    Member

    Hi Danielle (I have alittle sister named Danielle!) nAnyway, wow I never realized there were so many others with siblings with PKU. Danielle do you have alot of other siblings? My dietian told me its more common for there to be more the one kid with PKU in big familys. I have an 8 year-old sister (Erica) with PKU aswell and then 4 sisters and a brother without PKU.

    #5508
    Avatar of Amy
    Amy1781
    Member

    Hi everyone, my husband is 25 and has PKU. We are in the process of getting back on diet. He is very moody, tired and gets those severe headaches. It nice to see people on here that are around the same age. He has two siblings who do not have PKU, he is the youngest fo three.

    #6384
    Avatar of
    Anonymous

    hello everyone, my name is jessica im 22 and i have 2 daughters 1 has PKU. nice to meet all of you.

    #6385
    Avatar of Breanna
    BreaMarie91
    Member

    Hi Jessica! I have PKU like your daughter, feel free to talk to me anytime you want!

    #6483
    Avatar of
    Anonymous

    hello im Amanda ! nice to meet u all! we are u from? anyone know of any new products or free samples and recipies.. i love trying new things!!

    #7434
    Avatar of Stacey
    9171994
    Member

    new to this sight. I am 36 have PKU trying to get back on diet but financially its been rough so I am going to try to adjust my diet myself with only low phe foods from cambrooke.

    #7865
    Avatar of Rebecca
    beckyb
    Member

    hiya! Im Becky am 18, have been off diet for a few years now! would like to hear other peoples experience of PKU on and off diet! I noticed the sibling thing going on, I have 3 sisters I’m the special one in my family, none of the others have PKU!

Viewing 11 posts - 1 through 11 (of 11 total)
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